There’s plenty going on in the world of mitochondrial disease, and you can learn all about our work and read the latest news articles and blogs from across all areas of our charity here.
From personal stories about families affected by the disease to the latest research projects and plenty more, why not sign up to our newsletters, and follow us on social media, to ensure you never miss a thing.
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Research 6 July 2018
A mitochondrial research nurse based at John Radcliffe Hospital in Oxford and funded by The Lily Foundation, Colwynn Phillips represents the best of our charity's fruitful working relationship with the NHS. Here she talks about her dual role supporting affected families and coordinating a patient cohort.
Support 29 June 2018
This July the National Health Service turns 70. To celebrate we've put together five key ways in which The Lily Foundation works closely with the NHS to support patients and families affected by mitochondrial disease. It's a unique partnership between a small, specialised charity and one of the world’s largest publicly funded health services, and one that we are immensely proud to uphold.
Research 28 June 2018
Leading medical journal The Lancet has published a scientific review written by Professor Shamima Rahman, who is a member of The Lily Foundation Medical Board and has a research project funded by the charity.
Research 24 June 2018
The Lily Foundation has announced funding for important new research into nucleoside therapy as a treatment for mitochondrial depletion syndromes.
Personal stories 30 May 2018
The Lily Foundation, the UK's leading mitochondrial disease charity, has announced that Ben Carter, the top UK marketeer at Just Eat, has been appointed Chair of the charity.
Research 24 May 2018
The Lily Foundation recently attended two conferences to hear about the latest developments in mitochondrial research. These were the 11th Annual UK Neuromuscular Translational Research Conference at Fitzwilliam College, Cambridge, and Mitochondrial Medicine 2018 at the Wellcome Genome Campus in Hinxton. Here we share some of the highlights from both events.
Awareness 18 May 2018
The Lily Foundation is set to have its message about mitochondrial disease heard on popular radio stations throughout the UK after being selected as a 2018 Make Some Noise charity.
Research 18 May 2018
Nicotinamide Riboside (NR) is a form of vitamin B3 hyped for its alleged anti-ageing properties, but research shows it could be a treatment for mitochondrial disease. The Lily Foundation has recruited Dr Alex Clout, of UCL's School of Pharmacy and Institute of Neurology, to develop a formulation for patient trials.
Events 27 April 2018
Amateur boxers dealt a heavyweight blow to mitochondrial disease as Lily Fight Night 2018 raised a record £61k. Sky's Sam Hall was ringside.
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