There’s plenty going on in the world of mitochondrial disease, and you can learn all about our work and read the latest news articles and blogs from across all areas of our charity here.
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Research 23 June 2023
June saw the arrival once again of Euromit, the leading international conference on mitochondrial diseases. And there was a clear theme running through the event’s proceedings – the growing appreciation of the patient voice.
Research 24 May 2023
As we know all too well, mitochondrial disease is a bit of a mystery. We don’t yet fully understand why it presents differently and progresses differently in individuals, nor do we know how to best treat and ultimately cure it. However we believe that biomarkers could hold the key to better understanding of this rare disease.
Research 10 May 2023
We're delighted to read that in a UK first at least one baby has now been born using a pioneering IVF technique known as ‘mitochondrial donation’. This is a huge step forward in the fight against devastating mitochondrial diseases, which are life-limiting genetic conditions for which there is currently no cure.
Research 21 April 2023
We know all too well how tough it is to get a mitochondrial disease diagnosis here in the UK, even with our wonderful NHS and the support The Lily Foundation offers. So imagine suffering from mito and living somewhere like Zambia, Brazil, India or Turkey – it must be almost impossible to get answers.
Research 21 March 2023
The Lily Foundation is at the forefront of seeking treatments, and eventually a cure, for mitochondrial disease, and collaboration with others is essential in driving that research forward. One of our most exciting ongoing partnerships is with The PolG Foundation, so we spoke with the charity’s co-founder, Julie, to understand how the foundation was born and how their relationship with us has blossomed.
Research 13 March 2023
The Lily Foundation has been funding a study into a potentially life-changing new treatment for mitochondrial disease patients affected by epileptic seizures. Here to update us on progress is Katrin Bangel, part of the research team at the Wellcome Centre for Mitochondrial Research in Newcastle.
Research 8 February 2023
The Lily Foundation were proud to co-fund the first study to investigate the role of a Low Residue Diet (LRD) in helping to improve gut symptoms in patients with mitochondrial disease.
Research 26 January 2023
Alison Maguire (Head of Research and Finance) and Katie Waller (Science and Patient Engagement Officer) are delighted to be attending the British Paediatric Neurology Association’s 49th Annual Scientific Meeting, being held at The Royal College of Physicians of Edinburgh from the 25th-27th January 2023.
Research 25 January 2023
It was a busy end to 2022 for Alison Maguire (Head of Research and Finance) and Katie Waller (Science and Patient Engagement Officer), who have been proudly representing The Lily Foundation at a range of recent events aimed at medical professionals, scientists and researchers.
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