The Lily Foundation logo featuring a butterfly, hearts and an 'x' for a kiss

Fighting mito,
finding hope.

Friendship, fun and unforgettable adventures!


3 October 2023

What better way to feel part of a community than by gathering together for a weekend of shared physical challenges and emotional support in a stunning location. That’s exactly what motivated 18 young adult mito patients to head to the beautiful Lake District for the Lily Young Adult Weekend recently.

A group of people wearing outdoor clothing and harnesses and cheering, with hills in the background A young lady in a wheelchair strokes a horse's face in a stable A lady dangles from a zip wire in trees giving a thumbs up to the camera A group of people laughing around a small table wearing inflatable crowns A man in a wheelchair and a lady standing next to him are toasting marshmallows on sticks in a fire pit A man is carefully carrying a yellow lego model  while laughing A group of people seated and standing are holding up colourful canvases A young man in a harness with a stick is making his way across a wooden treetop platform A lady in a chair is turning around to laugh with a young man sitting on the arm of the chair with his back to the camera A man in a wheelchair reaches the end of a wooden treetop platform and high fives the lady waiting for him A driveway with a 'Calvert Trust' sign and a building in the distance A group of people sitting around a low table laughing and wearing stick-on moustaches A young man bends over a painting while a lady leans in with a paintbrush and another lady looks on A lady with long blonde hair is roaring with laughter in a group Two ladies with stick-on moustaches are laughing at the camera, one is holding a glass of wine A lady sitting on a horse is being led along a path by another lady with two more horses behind A lady in a wheelchair is on a dancefloor holding the hand of a man who is dancing with her An overhead image of a group of people crowded around a table covered with lego pieces A young man is sitting outside with a look of concentration using a vegetable peeler to whittle a stick into a point A man with blonde hair pushed back by a hairband is turning laughing at people to his left

They were joined by an enthusiastic team of Lily staff and medical professionals at Calvert Lakes near Keswick, a centre specialising in outdoor adventures for people with disabilities. And neither signal failure on the trains nor motorway delays could deter any of our determined attendees.

The travel chaos meant a delayed dinner for many but after checking in and refuelling, everyone made their way to the games room for an emotional mix of reunions and introductions, before splitting into teams for a rather competitive quiz organised by the Lily events team. Congratulations to the ‘Avanti Survivors’ who took the victory crown – literally – and commiserations to team ‘Simple Minds’ who came last but not least and gamely sported their booby-prize stick-on moustaches.I’ve had the time of my life… So many precious memories that will last a lifetime. Indescribably grateful to Liz and the team for the privilege of being able to join such a special event with so many special people…” – Danielle, 35, mito patient

Saturday dawned bright and breezy, and after a hearty breakfast it was time for the first physical challenge of the weekend. Sessions ranged from zip wires, high ropes and a wheelchair challenge course to rock climbing, bushcraft, cycling or spending time with ponies at the stables.

Thanks to specialist equipment and the brilliant team at the Calvert Trust, all the activities on offer are safe and accessible for all. And it was clear that everyone had a fantastic time discovering new skills and overcoming old fears, returning to the centre for lunch excited, hungry and exhausted in equal measure.

In the afternoon there was a chance to slow down whilst brushing up on painting skills at an art therapy class, with more than a few budding artists unleashing their potential. The water babies in the group were able to enjoy the fantastic facilities at the centre, which boasts a multi-sensory hydrotherapy pool, spa, bubble pads and water fountain. Oh, and stunning views out to the Lake District scenery beyond.

After dinner it was back to the games room, this time for a lego challenge that proved harder than it looked, followed by a disco. The award for best dancer must go to Jaeden, who also managed to coax everyone onto the dance floor for a thoroughly enjoyable boogie. And a big shoutout to Tim’s acoustic guitar session that kept the night owls entertained and rounded off a memorable night.

Massive thank you to all the team for organising a brilliant weekend! Highlight was seeing Mum do the zip wire. It was lovely to meet everyone. I don’t feel alone anymore thanks to the Lily family.” – Bal, 31, mito patient

It was an adventure-packed Sunday morning with another accessible outdoor activity. Lunch followed, then a flurry of fond farewells as everyone departed, their heads filled with magical memories and newly found self-belief. What a wonderful weekend – a chance for all involved to step outside of their comfort zone, and for new acquaintances to become old friends.

Oxford Clinical Nurse Specialist Sue, who helped out during the weekend, was almost lost for words about its impact. “I can’t explain how great it is!” she said. “I gain so much insight into how these patients live day-to-day. I attended last year too, and there were a few quiet, reserved patients who this year came out shining with confidence. We all gain an awful lot from the weekend and grow as professionals in spending 3 days living alongside mito. It’s a privilege to be included.”

A huge thank you to everyone who helped make the weekend such a success – all the staff at Calvert Lakes; the clinicians and researchers – Catherine and Isabel from the Newcastle mito team, Will and Adelina from London and Sue and Heather from Oxford; Claire who provided the art therapy session; DJ Mark; videographer Jason from Fyrefly Studios and photographer Paul who both captured the magic of the weekend so perfectly.

Watch the highlights of the weekend!

Donate today

Donate through JustGiving to help The Lily Foundation fight mito and find hope for patients and their families.