Fighting mito,
finding hope.
Mito awareness week is coming – from local towns to global headlines, let’s spread the word together.
Mitochondrial disease, or ‘mito’, is a rare, complex and difficult-to-diagnose genetic disorder that affects people in very different ways. It can affect any organ at any age, and often occurs in babies and young children. There is currently no cure, but we’re working hard to change that, and are the largest charitable funder of mitochondrial research in Europe.
Mitochondrial dysfunction has been identified as a key factor in other more common diseases including dementia, Parkinson's disease, epilepsy and cancer. The research we fund and support not only holds promise for individuals with mitochondrial disorders, but has the potential to benefit millions of others too.
That’s why, despite being a little-known disease, mitochondrial disease could be the key to some of the most important medical breakthroughs of our time.
Donate through JustGiving to help The Lily Foundation fight mitochondrial disease and find hope for patients and their families.
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At just 16 years old, Elinor faced challenges most of us will never fully understand. Living with mitochondrial disease – a rare, progressive and currently incurable condition – she experienced pain, exhaustion and uncertainty every day.
Despite her diagnosis, Elinor was full of spirit, strength and insight. She was determined to live her life with courage, and to help others understand what it truly means to live with mito.
This is her story.
Help us to support patients like Elinor, raise awareness of mitochondrial disease and fund research into treatments and a cure.
Help us to fight mito and find hope for everyone affected.
We’re celebrating another huge step forward for the mito community. For the first time ever, a treatment for one form of mitochondrial disease has been approved for use on the NHS in England. Idebenone is now available to help people living with LHON, marking a historic breakthrough and a huge leap forward in care and hope!
We’re delighted to share the news of a significant step forward in the fight against mitochondrial disease: research just published confirms the early success of mitochondrial donation IVF, a groundbreaking fertility technique designed to reduce the transmission of certain types of mito from mother to child.
For more than four decades, Professor Sir Doug Turnbull and colleagues have been at the forefront of mitochondrial research. Their pioneering work helped lead to the UK becoming the first country in the world to approve the technique of mitochondrial donation IVF, offering hope to families affected by mitochondrial disease. Here, he reflects on the journey, the challenges and what still lies ahead.
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