Zoom Room webinar: Mitochondrial research – from d… - The Lily Foundation
The Lily Foundation logo featuring a butterfly, hearts and an 'x' for a kiss

Fighting mito,
finding hope.

Four Lily Fundraisers, laughing, covered in mud at a Tough Mudder event Four Lily Fundraisers, laughing, covered in mud at a Tough Mudder event

Zoom Room webinar: Mitochondrial research – from discovery to patients

Illustrated image of a laptop in a conference call scenario

Lily Events - Zoom webinar

Location: Zoom

Date: 24 Mar 2026

Join us for our first Zoom Room webinar of 2026. Professor Shamima Rahman will join Katie Waller, Head of Patient Programmes at The Lily Foundation, to provide the latest updates about mitochondrial research and what it really takes to turn scientific discoveries into real-world treatments.

  • Why does it take so long for new treatments to reach patients?
  • Why have some clinical trials not worked as hoped?

Professor Rahman will explain the challenges of developing drugs for rare mitochondrial conditions, how traditional clinical trial pathways work and how newer approaches are beginning to change the landscape.

She’ll also explore the growing excitement around advanced therapies such as gene and stem cell treatments, looking beyond the headlines to understand what recent successes mean in practice and what’s happening behind the scenes.

Shamima will be joined by our own Katie Waller, who will talk about why patient-focused trial design matters so much and how the patient voice, through initiatives such as IMPACT, is helping shape research to better reflect the needs and lived experiences of families.

Please send any questions for Shamima in advance to [email protected] and we’ll address them during the live Q & A.

This webinar is designed to be a supportive, accessible session for anyone interested in the future of mitochondrial research.

Please note: the session will be recorded and will be available to view on our website and Youtube channel afterwards.

Sign up today by completing your details below.

A big thank you for your support

My details

Start typing your address in the box below
Enter address manually / I am not in the UK

By ticking the boxes below, you agree to us contacting you with marketing information as per our privacy policy by the following methods: