Team Fletcher
Fletcher was a healthy and happy child. When he was around 8 years old I (Fletcher’s mum) noticed a regression in his skills. Symptoms we noticed were extreme lethargy and slurred speech. Fletcher was unable to jump, run or walk distances. He had some big falls where he couldn’t catch or stop himself.
Fletcher’s physio referred him to his doctor who immediately had her suspicions as to what was going on. The diagnosis of Leigh syndrome was a massive shock to the whole family. Since then, Fletcher’s condition has progressed and he has dystonia caused by his mitochondrial disease. He uses a wheelchair most of the time.
The diagnosis really turned our world upside down and now we just take life day by day.
Watching the disease take over parts of his body has been so hard however Fletcher seems to take it all in his stride. He’s a happy, funny, game-loving, caring and amazing little boy who has a heart of gold. Fletcher has a wicked sense of humour and is always making us laugh or roasting us.
Mitochondrial disease is a devastating disease, and it makes you grieve for a life for someone who’s still here. The life you imagined your child living is no longer the one they’ll lead.
How to support Team Fletcher
Fletcher’s family would love you to support The Lily Foundation’s work. Whether it’s a one-off gift or a regular contribution, simply follow the link below to visit their JustGiving page and join the hundreds of others who have already made a difference.
Your donation will help fund groundbreaking research into mitochondrial disease, raise vital awareness and support hundreds of patients and families affected by this little-known but incurable condition.
Since 2007, The Lily Foundation have already raised over £11 million. With your help, we can continue to fight mito and find hope for everyone affected.
