Remembering Erin
Erin Louise was born four and a half weeks early on 11th July 2019 at 3:26am. She was a very happy baby and had a smile for everyone she met. She captured our hearts instantly and made our family complete. Amelia (Erin’s big sister) adored her and their bond was and is unbreakable.
When Erin wasn’t meeting her milestones, I took my concerns to the doctor. I was reassured this was due to her being premature. As Erin was my second baby, I questioned this as something didn’t seem right. I was frequently taking her to the doctors for colds, and I was told there was nothing they could do.
On 19th February 2020 we went out for the day as it was the school holidays, and we all had a wonderful time. At night, I took Erin to bed as usual. As I was rocking her to sleep, I felt her breathing seemed strange. I took her back downstairs and she stopped breathing. The ambulance came and took her to hospital, but Erin died at 8:45pm, at just seven months and eight days old.
We had no idea why she died and the hospital said she was a perfectly healthy baby. She had to have a postmortem and, because of lockdown, we didn’t get the results for a year. The wait was excruciating. When we finally got the results, we found out Erin had a rare form of mitochondrial disease – mitochondrial cardiomyopathy ACAD9.
Erin is still a massive part of our lives, and we talk about her every single day and always will.
After we found out Erin’s cause of death we found The Lily Foundation and soon realised what an amazing charity it is. We’re raising money for them in the hope that one day they will find a cure.
How to support Remembering Erin
Erin’s family would love you to support The Lily Foundation’s work. Whether it’s a one-off gift or a regular contribution, simply follow the link below to visit their JustGiving page and join the hundreds of others who have already made a difference.
Your donation will help fund groundbreaking research into mitochondrial disease, raise vital awareness and support hundreds of patients and families affected by this little-known but incurable condition.
Since 2007, The Lily Foundation have already raised over £11 million. With your help, we can continue to fight mito and find hope for everyone affected.
