Remembering Hattie
Our beautiful firstborn daughter Hattie was born on 21st June 2023. We were besotted with her and obsessed by her every move.
We spent the first two weeks in NICU as she had a high lactate level, and our local hospital were in daily contact with Great Ormond Street Hospital about how to treat her. Although worried, we thought all would be fine.
We finally got to take her home and spent five weeks blissfully unaware of any issues. We settled into our new life together.
It was at seven weeks old that Hattie started to have apnoea, so we called 999. From here on it seems like a blur; there were many hospital trips, ambulance rides and stays at GOSH.
Mitochondrial disease was mentioned but wasn’t confirmed, so to protect ourselves we didn’t look into it, in the hope that it wouldn’t be that.
We finally got confirmation that Hattie had an abnormality in a gene called MT-ND1 and it was present in 93% of the mitochondrial chromosomes in Hattie’s blood. She passed away in our arms in the September.
How to support Remembering Hattie
Hattie’s family would love you to support The Lily Foundation’s work. Whether it’s a one-off gift or a regular contribution, simply follow the link below to visit their JustGiving page and join the hundreds of others who have already made a difference.
Your donation will help fund groundbreaking research into mitochondrial disease, raise vital awareness and support hundreds of patients and families affected by this little-known but incurable condition.
Since 2007, The Lily Foundation have already raised over £11 million. With your help, we can continue to fight mito and find hope for everyone affected.
