Remembering Teddie - The Lily Foundation
The Lily Foundation logo featuring a butterfly, hearts and an 'x' for a kiss

Fighting mito,
finding hope.

Logo of The Lily Foundation's Team Remembering Teddie Logo of The Lily Foundation's Team Remembering Teddie

Remembering Teddie

Our cheeky, smiley, happy, gorgeous Teddie was diagnosed with a mitochondrial disease in 2019, at just 2 years old. He sadly lost his battle to this awful disease in July 2025, at just 8 years old.

Teddie achieved so many things and reached so many milestones – milestones that medical professionals said he would never reach. Poor muscle tone didn’t stop Teddie. He would crawl around the house for hours, playing with his toys, which was his favourite thing to do, and often causing mischief, all with a cheeky smile. Teddie was non-verbal but his smile spoke a thousand words.

A young mito patient outside in a buggy smiling at the camera

Despite the hospital appointments and admissions, Teddie faced it all with a smile. His determination, courage and bravery are qualities that many adults can learn from in a life we all sometimes take for granted.

We as a family knew that Teddie’s condition was life-limiting, but we never thought the day would come when we’d have to say goodbye to him, our brave boy. But Teddie does what Teddie wants to do.

The Lily Foundation is a charity very close to our family’s hearts, a charity we’re so very passionate about.

A father with his hand protectively on his son's arm smiling at the camera

How to support Remembering Teddie

Teddie’s family would love you to support The Lily Foundation’s work. Whether it’s a one-off gift or a regular contribution, simply follow the link below to visit their JustGiving page and join the hundreds of others who have already made a difference.

Your donation will help fund groundbreaking research into mitochondrial disease, raise vital awareness and support hundreds of patients and families affected by this little-known but incurable condition.

Since 2007, The Lily Foundation have already raised over £11 million. With your help, we can continue to fight mito and find hope for everyone affected.

Support Remembering Teddie today

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