Team Alanah Rose
Our beautiful Alanah Rose was born on 27th March 2023.
In December 2023 she was diagnosed with Leigh syndrome, a type of mitochondrial disease. Sadly she lost her fight with the disease at just 15 months old on 20th June 2024.
Alanah was a beautiful, bright, happy baby girl, known for her huge lashes and beautiful smile that would light up the room. She had so much love and happiness that she gave to everyone she met. No obstacle got in her way and she bravely fought mito till the very end.
The hole that her passing has left in our hearts will never be replaced. Because of this, we want to make a difference in her memory. So we’re asking everyone who knew and loved Alanah to join together and raise funds for The Lily Foundation charity, to help them find a cure so that no other family has to go through what we have.
How to support Team Alanah Rose
Alanah Rose’s family would love you to support The Lily Foundation’s work. Whether it’s a one-off gift or a regular contribution, simply follow the link below to visit their JustGiving page and join the hundreds of others who have already made a difference.
Your donation will help fund groundbreaking research into mitochondrial disease, raise vital awareness and support hundreds of patients and families affected by this little-known but incurable condition.
Since 2007, The Lily Foundation have already raised over £11 million. With your help, we can continue to fight mito and find hope for everyone affected.
