Team Daisy Shines
On 12th December 2020, our precious Daisy came into the world, weighting 5lbs 10oz.
Born with hip dysplasia in her right hip, she faced challenges from the very start. As she grew, Daisy’s journey became even more complex – at the age of 3, she began experiencing eye problems and developed anxiety over the simplest things. Loud noises unsettled her, and tremors in her little body soon followed.
In December 2024, an MRI revealed troubling grey areas on Daisy’s brain and brainstem. Countless tests followed, and on 20th January 2025, Daisy was diagnosed with mitochondrial disease (MT-ND5). Despite the difficulties, Daisy continued to shine, her strength and spirit inspiring everyone around her. She adored hot chocolates and sweet treats, and was known for her delightful sassiness.
While we were enjoying a family holiday abroad in March 2025, Daisy’s fight came to an end and she passed away. Our amazing, strong little girl left a profound impact on our lives. Though our hearts are shattered, we’re determined to honour Daisy’s legacy by helping to find a cure for this cruel disease.
Daisy’s family would love you to support The Lily Foundation’s work. Whether it’s a one-off gift or a regular contribution, simply follow the link below to visit their JustGiving page and join the hundreds of others who have already made a difference.
Your donation will help fund groundbreaking research into mitochondrial disease, raise vital awareness and support hundreds of patients and families affected by this little-known but incurable condition.
Since 2007, The Lily Foundation have already raised over £11 million. With your help, we can continue to fight mito and find hope for everyone affected.
