Team Jayden
When Jayden was born, it was quickly realised that something wasn’t right. He was very small, struggled to feed and didn’t reach his milestones.
He was misdiagnosed several times and often went from bursts of energy to no energy. When he had bursts of energy, the professionals would suggest he was fine.
Eventually he was referred to the Centre for Life in Newcastle, where his low mitochondria were detected. This allowed us to be referred to the mito team in Newcastle, who are still trying to find the exact gene that causes Jayden’s mitochondrial disease.
Jayden suffers from neuropathy, ataxia and retina pigmentation – often abbreviated to NARP. He has pain and fatigue every day although some days are far worse than others.
Jayden loves music and Newcastle United. He never lets anything get in his way and is determined not to let his mitochondrial disease define him.
The Lily Foundation have given us invaluable support and information, as well as a community to belong and meet people in the same situation as us who just get it.
How to support Team Jayden
Jayden’s family would love you to support The Lily Foundation’s work. Whether it’s a one-off gift or a regular contribution, simply follow the link below to visit their JustGiving page and join the hundreds of others who have already made a difference.
Your donation will help fund groundbreaking research into mitochondrial disease, raise vital awareness and support hundreds of patients and families affected by this little-known but incurable condition.
Since 2007, The Lily Foundation have already raised over £11 million. With your help, we can continue to fight mito and find hope for everyone affected.
