Team Keira
Keira was born on 11th May 2011 and became the love of our lives, our whole world. Her smile lit up the room. Blue eyes you got lost in. Hair just like Rapunzel’s.
She had her first seizure at the age of 3. Shortly after this episode, which we thought was a one off, Keira started to experience them more frequently. During one of the hospital admissions in June 2015, Keira was diagnosed with Alpers-Huttenlocher syndrome. This was the first time we’d heard of mitochondrial disease. After learning what mito was, we knew the outcome would be bleak, with our lives never the same again.
Kiera’s tiny body decided she could no longer fight this nasty disease, and she grew her angel wings on 4th July 2016 in the arms of Daddy and Mummy. She was 5 years old. Our hearts shattered. Keira brought so much love and joy to all who met her.
She has an amazing sister Chloe who is making sure she’s doing all she can to raise awareness and donations for her brave big sister.
Currently there is no treatment or cure for mitochondrial disease, just pain relief. We’re doing everything we can to help The Lily Foundation find a cure so eventually no other family has to endure the pain, loss and heartache we still face after Keira’s passing.
Please do consider an event of your own in loving memory of our baby girl.
How to support Team Keira
Keira’s family would love you to support The Lily Foundation’s work. Whether it’s a one-off gift or a regular contribution, simply follow the link below to visit their JustGiving page and join the hundreds of others who have already made a difference.
Your donation will help fund groundbreaking research into mitochondrial disease, raise vital awareness and support hundreds of patients and families affected by this little-known but incurable condition.
Since 2007, The Lily Foundation have already raised over £11 million. With your help, we can continue to fight mito and find hope for everyone affected.
