Team Poppy
12 years ago, our youngest daughter, Poppy (then aged 2), was diagnosed with mitochondrial disease. We had no idea what this was or what this meant and we felt very lost in a world of uncertainty about what this would mean for her health, her future and for us as a family.
At this point, we had no support and had been told there was no treatment and no cure.
Poppy, now 14 years old, is impacted by an inability to walk or to sit unsupported, and she suffers from extreme muscle tension in her arms and legs which makes her unable to do any basic daily activities.
She can no longer eat orally, so is tube fed, and is no longer able to communicate verbally, so she relies on the use of eye pointing and facial expression. All these challenges are due to faulty mitochondria. She fights a huge battle every single day but continues life with a big smile on her face and is a joy to everyone around her.
Poppy’s family would love you to support The Lily Foundation’s work. Whether it’s a one-off gift or a regular contribution, simply follow the link below to visit their JustGiving page and join the hundreds of others who have already made a difference.
Your donation will help fund groundbreaking research into mitochondrial disease, raise vital awareness and support hundreds of patients and families affected by this little-known but incurable condition.
Since 2007, The Lily Foundation have already raised over £11 million. With your help, we can continue to fight mito and find hope for everyone affected.
