Team Sophie - The Lily Foundation
The Lily Foundation logo featuring a butterfly, hearts and an 'x' for a kiss

Fighting mito,
finding hope.

Logo of The Lily Foundation's Team Sophie Logo of The Lily Foundation's Team Sophie

Team Sophie

Our darling Sophie passed away on 26th April 2024, aged 7. She was just a few weeks away from her 8th birthday, something which she was really looking forward to.

Sophie suffered with a mitochondrial disease, simply meaning that her ‘batteries’, known as mitochondria, in her cells didn’t work and couldn’t provide energy. This meant that many of Sophie’s organs didn’t work, and over a period of 3 years her health declined greatly.

A young mito patient wearing glasses and a white t-shirt sitting in a wheelchair

There’s currently no treatment or cure for mitochondrial disease, which is heartbreaking for any family to hear.

Sophie was a shining light in our family. She was an inspiration to everyone who knew her. She lived her life to the full and made the most of every day. We are so lucky to have had her in our lives.

Young mito patient Sophie with her family at the Lily family support weekend

How to support Team Sophie

Sophie’s family would love you to support The Lily Foundation’s work. Whether it’s a one-off gift or a regular contribution, simply follow the link below to visit their JustGiving page and join the hundreds of others who have already made a difference.

Your donation will help fund groundbreaking research into mitochondrial disease, raise vital awareness and support hundreds of patients and families affected by this little-known but incurable condition.

Since 2007, The Lily Foundation have already raised over £11 million. With your help, we can continue to fight mito and find hope for everyone affected.

Support Team Sophie today

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