There’s plenty going on in the mitochondrial disease community, and you can learn all about our work and the support we offer, and read the latest news articles and blogs from across all areas of our charity here.
From personal stories about families affected by a mitochondrial disease diagnosis to the latest mitochondrial research projects and plenty more, why not sign up to our newsletters, and follow us on social media, to ensure you never miss a thing.
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Research
Awareness
4 October 2019
The Lily Foundation is proud to announce its partnership with Euromit 2020, the world's largest ever international conference on mitochondrial disease, which will be held in Newcastle next summer.
Research
Awareness
12 September 2019
The Lily Foundation is proud to be a member of the Leigh Syndrome International Consortium, a newly formed group of international rare disease charities committed to improving clinical care for Leigh Syndrome patients around the world.
Research
28 May 2019
The Lily Foundation and the Wellcome Centre for Mitochondrial Research (WCMR) have announced a strategic partnership to improve the lives of people affected by mitochondrial disease.
Research
14 May 2019
Input from patients and caregivers has been helping to guide the development of potential treatments for mitochondrial disease as part of the ongoing PREFER study. Dr Cecilia Jimenez-Moreno, the PREFER clinical case study lead based at the Wellcome Centre for Mitochondrial Research at Newcastle University, tells us what this means and what happens next.
Research
30 April 2019
As trials begin for a new medicine to treat mitochondrial myopathy, we talk to Dr Alex Dorenbaum, Chief Medical Officer of Reneo Pharmaceuticals, about his hopes for the drug and why his company is working with The Lily Foundation.
Research
17 April 2019
Prof Sir Doug Turnbull, Director of the Wellcome Centre for Mitochondrial Research and a long-serving member of The Lily Foundation Medical Board, has been named a Fellow of the Royal Society.
Research
20 March 2019
The Lily Foundation has awarded research grants totalling £250,000 to three new scientific studies that aim to improve the lives of people with mitochondrial disease.
Research
4 February 2019
The Lily Foundation is proud to announce that a project part-funded by the charity to develop a therapy for MNGIE syndrome has been approved for clinical trials in the UK, and could become the first effective treatment for this form of mitochondrial disease.
Research
5 December 2018
The Lily Foundation has continued its strong working partnership with the NHS by co-funding a clinical studies day with leading mitochondrial disease specialists in Oxford.
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