You’ll find lots of information about what assistance is available over on the NHS Rare Mitochondrial Disorders Service website, from AA and CA to PIP and SSP. But if you need a bit more help, or would like to ask a specific question, please email [email protected] and she’ll do her best to assist.
Benefits
As part of our mission to support everyone affected by mitochondrial disease, we believe that should cover financial support too.
Having a diagnosis of mito doesn’t necessarily mean that all patients will develop health complications from the disease. Many patients with a diagnosis could remain free of symptoms during their life.
However, if your health and your ability to work or complete everyday tasks are affected, you could consider applying for benefits to help you with your living costs.
Understanding what benefits you might be entitled to, and applying for those benefits, can be both stressful and confusing, especially when you’re already dealing with the emotional and physical effects of the disease, and that’s why we have a dedicated Benefits Advisor who’s here to help mito patients and their families navigate the tricky topic of financial welfare.