Need someone to talk to?

Need someone to talk to? We are here to help.

We’re here to help

Living with mitochondrial disease can be an isolating and frightening ordeal. If you or someone close to you has received a mitochondrial disease diagnosis, you might be feeling anxious, confused or overwhelmed. Perhaps you have lots of questions, anxieties about what the future holds, or need help managing all the difficult changes in your life.
The good news is you don’t have to face these challenges alone. Talking to someone who understands your situation can bring a sense of relief and clarity, and help you to plan a way forward.

All conversations are private and confidential, and we respect your right to decide what's best for you. To get in touch call Liz on 0300 400 1234 or 07947 257247, or email [email protected]

Support for patients and families

When you or a family member is diagnosed with mitochondrial disease it can come as a huge shock. We offer emotional and practical support to help you and your loved ones through the darkest times and beyond.

We can't make you or your loved one better (yet), but we can break down barriers, provide much-needed information and advice, and connect you to medical specialists and other families in your situation so you don’t feel so isolated.

The Lily Foundation counselling service

The Lily Foundation are pleased to be working in partnership with Rareminds to offer a new free, confidential counselling service for family members and individuals aged 18+ impacted by mitochondrial disease. The Lily Foundation counselling team comprises two trained and experienced therapists who have undertaken additional training with Rareminds on Counselling for Rare Diseases.

Coping with child bereavement

If you have lost a child to mitochondrial disease, professional counselling can help. We work in partnership with Child Bereavement UK to support families from the point of diagnosis to coping with bereavement and beyond. Visit for more information.