NHS Rare Mitochondrial Disease Service

The Lily Foundation have teamed up with the NHS Highly Specialised Service (HSS) for Mitochondrial Disorders, to bring you a new website for patients and professionals.


This website provides the following information:

  • Who the HSS are
  • Services they provide
  • How patients and other healthcare professionals can access the HSS
  • Mitochondrial disorders information for patients and families
  • Mitochondrial disorders information for healthcare professionals
  • Information on forthcoming events 

The NHS Highly Specialised Services (HSS) for rare mitochondrial disorders provide a comprehensive high quality service for this rare group of disorders, with centres in London, Newcastle and Oxford. Each centre has international reputation for clinical care and research in mitochondrial disorders, and has an expert team of doctors and other healthcare professionals.