National Conversation on Rare Diseases

The Minister for rare disease at the Department of Health and Social Care, Baroness Blackwood, announced a national conversation to understand how we can better care for people living with rare disease. 

This survey aims to identify the major challenges faced by rare disease patients and the people and organisations that care for them. The themes identified in the survey will feed into a framework to follow the current UK Strategy on Rare Diseases, which runs until the end of 2020.  

To take the survey, click the following link: