Mitochondrial disease resources - The Lily Foundation
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Fighting mito,
finding hope.

Mum crouched down smiling and cuddling her child in a Lily Foundation t-shirt, whilst another child in a pushchair is smiling Mum crouched down smiling and cuddling her child in a Lily Foundation t-shirt, whilst another child in a pushchair is smiling

Are you affected by mito?

If you’ve received a mitochondrial disease diagnosis, The Lily Foundation are here to offer emotional support and practical advice.

Have you or a loved one been diagnosed with mitochondrial disease?

If you or someone you know has recently been diagnosed with mitochondrial disease, The Lily Foundation are here to offer compassionate and ongoing support every step of the way.

Receiving a diagnosis can feel overwhelming and isolating, especially when mitochondrial disease is unfamiliar. You may have questions, fears and uncertainties about what lies ahead, such as whether your disease is curable, what causes it and how it may impact your life.

We’re here to help you navigate these questions, offering resources, guidance and a caring community so you don’t have to face these challenges alone.

Our support for patients and families

Whether you’re a patient, parent, sibling or friend, we’re here to provide comprehensive support. Our resources and services are designed to help you manage the emotional, physical and practical aspects of mitochondrial disease, with a focus on improving quality of life.

Support for medical professionals

We also work closely with healthcare providers, offering up-to-date information on mitochondrial disorders to assist in the diagnosis, treatment and care of patients. Our goal is to empower medical professionals with the knowledge they need to support patients and their families effectively.

Our vision for the mitochondrial disease community

Our vision is for a world in which every mitochondrial disease patient has a voice and access to treatment, support to improve their life and, ultimately, a cure.

Together we’re navigating the complexities of mitochondrial disease:

  • today raising awareness of mito across the globe;
  • tomorrow unlocking the cure through pioneering research;
  • forever supporting the mito community and empowering everyone to make a difference.

Join our community – you’re not alone

We invite you to learn more about our work, our mission and how you can connect with others who share your journey. Explore our website and our information on ‘understanding mitochondrial disease’, take a tour through ‘The Lily Foundation’s research’ and discover how we offer ongoing ‘support for medical professionals’ who are helping the patients and families dealing with the disease. And, most importantly, take a look at all the ways we can ‘help all of those affected by mitochondrial disease’.

Together we’re stronger, and together we’re making a difference.

Welcome to our community. You’re not alone x

Research Zone

Step into The Lily Foundation’s Research Zone, your gateway to the latest breakthroughs, expert insights and cutting-edge developments in mitochondrial disease research.