NHS Rare Mitochondrial Disorders Service - The Lily Foundation
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Fighting mito,
finding hope.

Lab technician wearing blue gloves, using a pipette to put blue or yellow liquid into a rack of test tubes Lab technician wearing blue gloves, using a pipette to put blue or yellow liquid into a rack of test tubes

NHS Rare Mitochondrial Disorders Service

The Lily Foundation have teamed up with the NHS Highly Specialised Services (HSS) for Rare Mitochondrial Disorders to bring you a website for mitochondrial disease patients and professionals.

https://mitochondrialdisease.nhs.uk/

This website provides the following information:

  • who the HSS are
  • services they provide
  • how patients and other healthcare professionals can access the HSS
  • mitochondrial disease information for patients and families
  • mitochondrial disease information for healthcare professionals
  • information on forthcoming events.

The NHS Highly Specialised Service for Rare Mitochondrial Disorders provides a comprehensive, high quality service for this rare group of disorders, with centres in London, Newcastle and Oxford.

Each centre has an international reputation for mitochondrial disease testing, clinical care and research, and has an expert team of doctors and other healthcare professionals.

You can find out lots more detailed information about mitochondrial disease and its symptoms on this site, as well as examples of the different syndromes within mitochondrial diseases and further details about mitochondrial disease inheritance and reproductive options currently available.

Need someone to talk to?

We provide a free counselling service for patients affected by mitochondrial disease in conjunction with Rareminds. Find out more.