Fighting mito,finding hope.
Our guide has been created to help newly diagnosed patients understand mitochondrial disease and find support.
Mitochondrial disease resources for newly diagnosed patients: learn more about this rare inherited disorder.
Do you have a question about mitochondrial disease? You’ll find the answer here.
From Leigh syndrome to LHON: mitochondrial disease syndromes explained plus further support.
Our glossary of terms and definitions to help you better understand mitochondrial disease
Which drugs are safe to take and which should be avoided if you suffer from mitochondrial disease.
We work together to support mitochondrial disease patients from diagnosis to symptoms and beyond.
A pioneering reproductive option for mitochondrial disease patients championed by The Lily Foundation.
Help us to get this mitochondrial disease reference book into every GP surgery.
Explore reproductive options for those with mito, including ways to reduce the risk of passing it to future children.
A mitochondrial disease family support weekend event to connect, share experiences and find support.
Offers young people affected by mitochondrial disease fun, friendship and shared adventure.
An informal adult support weekend where adult mitochondrial disease patients can spend time together.
If you suffer from mitochondrial disease, our grant scheme could help make your wish come true.
Helping you to feel less isolated and better informed about your mitochondrial disease diagnosis.
Mitochondrial disease Patient Information Days offer informal chances to socialise and learn more.
Access our webinar library for expert insights, practical guidance and tips for living well with mito.
Understand what financial support you might be entitled to if you have a mitochondrial disease diagnosis.
If you have a mitochondrial disease diagnosis, become part of our community and stay in touch.
Everyday tips and tools to make living with mitochondrial disease that little bit easier.
Funding research into mitochondrial disease in order to improve lives is a key element of our strategy.
So far we’ve funded over 20 research projects in our search for treatments and a cure for mito.
Find details of research studies and clinical trials into mitochondrial disease currently taking place.
We’re proud to work with leading research institutions in seeking a cure for mitochondrial disease.
Your hub for the latest news, views and breakthroughs in mitochondrial disease research.
Discover all the ways patients and carers can help shape the future of mitochondrial disease research
Discover how this new research hub could transform mitochondrial disease diagnosis and treatment.
If you’re treating someone affected by mitochondrial disease, we can provide support and advice.
Discover all the ways we offer support to patients and their families affected by mitochondrial disease.
Tap into our expert panel to involve mitochondrial disease patients directly in your research.
Our new guide will help you make sense of your condition. Find easy-to-understand explainers, science simplified and the reassurance that we’re with you every step of the way.
If you have any problems please email [email protected]
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