Order copies of The Lily Guide to Mitochondrial Disease
Thank you for your interest in The Lily Foundation Guide to Mitochondrial Disease – our patient-focused resource designed to support clearer communication, improve understanding and empower those dealing with a diagnosis of mito.
About The Lily Foundation Guide to Mitochondrial Disease
Developed in collaboration with clinicians and individuals with lived experience, our guide offers:
- Plain-language explanations of mitochondrial disease.
- Clear descriptions of symptoms and management approaches.
- Practical advice for navigating healthcare and daily life.
- Accessible diagrams and patient-friendly explanations.
It’s designed to complement clinical conversations and ensure families leave appointments with trustworthy, easy-to-understand information they can revisit at home.
Request printed copies
If you would like to order physical copies for your clinic, department or organisation, please complete the form by following the link below. Please note: printed copies are for medical professionals only; an online version of the guide is available on our website for patients to view and download.
Any questions?
If you have any queries about our Guide to Mitochondrial Disease, please contact [email protected].
