Zoom Room webinars

Our Zoom Room webinars are hosted by the Lily team alongside professionals from across healthcare, research and education, and are designed to support patients and loved ones by covering the topics that matter most to our community.

Each session is carefully chosen and prepared based on the needs of patients, families and carers, so you can be sure you’re hearing about what’s relevant – and helpful – right now.

Whether you’re looking for practical advice or simple guidance on everyday living with mitochondrial disease, our webinars are here to help.

Below, you’ll find recordings of all our previous Zoom Room sessions. Whether you missed a session or want to revisit a topic, these recordings are available to watch in your own time.

Make sure you’ve signed up to receive our emails so you don’t miss out on future webinars.

Zoom Room 1: Living well with mitochondrial disease

Living with mitochondrial disease – or caring for someone who does – can be overwhelming. In our first Lily Zoom Room, Dr Ben Marram, Consultant Clinical Neuropsychologist, shares insights, practical strategies and support to help patients, families and loved ones live well, cope better and navigate life’s challenges. 

Suitable for people affected by mitochondrial disease, their families, friends or colleagues, and for those who may have lost someone to the condition.

Zoom Room 2a: Physiotherapy in mitochondrial disease for adults

A session aimed at adults with mitochondrial disease, hosted by Sarah Holmes, Clinical Specialist Physiotherapist in Neuromuscular Diseases at UCLH Centre for Neuromuscular Disease, focuses on exercise, pacing and equipment, and shares some top tips, suggestions and ideas for consideration to help mitochondrial disease patients manage their symptoms.

Suitable for adults aged 16 and over with mitochondrial disease. The session may also be helpful for parents and caregivers of mito patients.

Zoom Room 2b: Physiotherapy in mitochondrial disease for paediatrics

Hosted by Francesca Henderson, Paediatric Neuromuscular and Mitochondrial Physiotherapist at Oxford Children’s Hospital, this session focuses on exercise, pacing and equipment, and shares some top tips, suggestions and ideas for consideration to help with symptom management.

Suitable for parents and caregivers of a young patient with mitochondrial disease. Depending on the individual circumstances, families with older children may also benefit from this session.

Zoom Room 3: Staying well with mitochondrial disease

Led by Oxford’s Dr Victoria Nesbitt and Clinical Nurse Specialist Sue West, this practical webinar breaks down what good care looks like today, and what you can do to stay as well as possible. It covers the latest UK care guidelines, use of vitamins and supplements, medications considered safe for people with mitochondrial disease and the key health checks and monitoring that matter most to those with mitochondrial disease.

Whether you’re living with mitochondrial disease or caring for someone who is, this session is packed with useful insights and guidance.