Connect with us on social media

Social media has become a vital space for connecting with our mitochondrial disease community.

We offer private Facebook groups specifically for families of children with mitochondrial disease and for affected adults. These groups provide a supportive space to share experiences, exchange information and build lasting friendships with others who understand their journey. We post regularly to keep members up to date on events, research and news relevant to the mito community.

You can also follow our public Facebook page and other social channels, including X, Instagram, Tiktok, LinkedIn and Bluesky, where we connect patients and families with supporters, sharing updates and insights from the world of mitochondrial disease.

For lots more ways that The Lily Foundation can help you live with your diagnosis, please visit our mitochondrial disease support page.