UK Mito Patient Registry

Notice: the registry is now closed

Thank you for your interest in the UK Mitochondrial Disease Patient Registry. This registry has now closed and is no longer accepting new registrations.

The registry was established to collect information from people affected by mitochondrial disease to support research, improve understanding and enhance care for patients across the UK. We’re deeply grateful to all the individuals and families who contributed their time and data to this important work.

If you would like to:

• Learn more about current mitochondrial disease research, please see our UK trials and research studies page.
• Contribute your data for mitochondrial research, please speak to your specialist centre to be enrolled in their database for upcoming opportunities.
• Access patient information and support, please visit the Affected by mito section of our website.

Although this registry is now closed, The Lily Foundation continues to invest in groundbreaking research, because it’s the only way we’ll get closer to effective treatments and an eventual cure for mitochondrial disease.

With that in mind, we’re working hard behind the scenes on something very exciting in the world of mitochondrial research. Keep an eye out on our socials, and sign up for our newsletter if you’re not already subscribed, to find out more…