Zoom Room webinar: How to talk about mitochondrial… - The Lily Foundation
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Zoom Room webinar: How to talk about mitochondrial disease

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Lily Events - Zoom webinar

Location: Zoom

Date: 29 Sep 2026

Living with any form of mitochondrial disease can affect not only your body, but also your relationships, sense of self and the way you experience the world. When others can’t fully see or understand your condition, it can leave you feeling unseen, misunderstood and sometimes isolated. This online group workshop, with others who have similar lived experiences, gives you the opportunity to explore what living with mitochondrial disease means to you and how it may impact your relationships.

In this session, led by Rareminds counsellor Rebecca Hargreaves, we’ll think together about the emotional challenges and difficulties of talking about your condition, explore ways of communicating your experience and look at possible strategies and techniques that can support you.

Rebecca is an Adult and Young People’s Counsellor with a particular interest in the psychological impact of health conditions on the family as a whole. She originally worked as a nurse for over 20 years including in hospices, and is the former Lead for a large schools counselling service. She works as a counsellor with several rare disease patient organisations.

There will be a 20-minute presentation and a 40-minute Q&A.

Please send any questions for our panel in advance to [email protected] and we’ll address them during the live Q & A.

Please note: the session will be recorded and will be available to view on our website and YouTube channel afterwards.

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Your essential guide to mito

Our guide will help you make sense of your condition. Find easy-to-understand explainers, science simplified and the reassurance that we’re with you every step of the way.