Zoom Room webinar: How to talk to your child about… - The Lily Foundation
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Zoom Room webinar: How to talk to your child about mitochondrial disease

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Lily Events - Zoom webinar

Location: Zoom

Date: 22 Sep 2026

Finding the words to talk with your child about their diagnosis can feel daunting. This reflective workshop, led by Rebecca Hargreaves from RareMinds, offers a space to explore the thoughts, feelings and uncertainties that these conversations can evoke for both parents and children.

Together, we’ll consider how honest, developmentally appropriate communication can help children make sense of their experiences, strengthen emotional connection and foster resilience, while supporting you to feel more confident in navigating these important conversations.

Rebecca is an Adult and Young People’s Counsellor with a particular interest in the psychological impact of health conditions on the family as a whole. She originally worked as a nurse for over 20 years including in hospices, and is the former Lead for a large schools counselling service. She works as a counsellor with several rare disease patient organisations.

There will be a 20-minute presentation and a 40-minute Q&A.

Please send any questions for our panel in advance to [email protected] and we’ll address them during the live Q & A.

Please note: the session will be recorded and will be available to view on our website and YouTube channel afterwards.

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