Counselling service
We provide a free counselling service for patients affected by mito in conjunction with Rareminds.
Being diagnosed with mitochondrial disease can be not only a frightening and upsetting time, but it can also be very lonely. Because mito is so rare, sometimes friends and family just don’t understand, so it’s hard to find people who are in the same situation to talk to, to share hopes and fears with, and find support.
The good news is you don’t have to face these challenges alone.
Talking to someone who understands your situation can bring a sense of relief and clarity, and help you to plan a way forward. All conversations are private and confidential, and we respect your right to decide what's best for you. To get in touch call Liz on 0300 400 1234 or 07947 257247, or email [email protected].
You can also contact us through our social media channels. We monitor these closely and try to answer queries as quickly as possible. Many members of the team at Lily have direct experience of mitochondrial disease which makes a huge difference to the families we support.
Here are some of the other ways we provide ongoing support to anyone in the UK affected by mito.
We provide a free counselling service for patients affected by mito in conjunction with Rareminds.
If you suffer from mitochondrial disease, our grant scheme could help make your wish come true.
A wonderful chance for families affected by mitochondrial disease to come together and find support.
Young people affected by mitochondrial disease can take part in exciting adventures together.
Helping you to feel less isolated and better informed about your mitochondrial disease diagnosis.
Understand what financial support you might be entitled to if you have a mitochondrial disease diagnosis.
Informal occasions enabling you to socialise whilst learning more about mitochondrial disease.
If you have a mitochondrial disease diagnosis, become part of our community and stay in touch.
Little life hacks to make living with mitochondrial disease that little bit easier every day.
If you have any problems please email [email protected]