Support for those affected by mitochondrial disease - The Lily Foundation
The Lily Foundation logo featuring a butterfly, hearts and an 'x' for a kiss

Fighting mito,
finding hope.

We’re here to help

Receiving a diagnosis of mitochondrial disease can feel overwhelming – frightening, upsetting, and often isolating. Because mitochondrial disease is so rare, sometimes friends and family struggle to fully understand what you’re going through. This can make it hard to find others who share your experiences, leaving you without the support you need during a difficult time.

The good news is you don’t have to face these challenges alone.

Talking to someone who truly understands your situation can bring a sense of relief and clarity, and help you to find a way forward. Our conversations are always private and confidential, and we fully respect your right to make decisions that feel best for you.

How to reach us

If you need to talk, we’re here to listen. You can contact Liz by calling 0300 400 1234 or 07947 257247, or by emailing [email protected].

We’re also available through our social media channels, where we closely monitor messages to respond as quickly as possible. Many members of The Lily Foundation team have direct experience with mitochondrial disease, which makes a meaningful difference in the support we can provide to families.

Ongoing support for mitochondrial disease

We offer a variety of support services to help patients and their loved ones navigate life with mitochondrial disease. Explore how we can support you on your journey.

Wish Fund

If you suffer from mitochondrial disease, our grant scheme could help make your wish come true.