The charity will receive £9250 from the Coronavirus Community Support Fund, part of the Government-backed National Lottery Community Fund which supports UK organisations helping to improve their communities.
Reacting to the news, Liz Curtis, CEO of The Lily Foundation, said:
"This generous grant from the Coronavirus Community Support Fund will help us continue to provide much-needed support for patients and families affected by mito, who have been left particularly vulnerable by this pandemic.
Like many charities, we've been working very hard to adapt to these difficult times. Our first concern is for people affected by mitochondrial diseases, many of whom remain anxious, vulnerable and isolated even as lockdown restrictions ease.
We welcome this grant and are hugely grateful to the National Lottery Community Fund for recognising the importance of the work we do."
The Lily Foundation reacted fast to support people with mito as the Covid crisis unfolded in April. The charity launched extra services including a dedicated helpline, email and social media advice for patients, virtual community events, and a crisis response team to help those who had been left off the Government's register of extremely vulnerable persons.