Making a difference through personal experience - News - The Lily Foundation
The Lily Foundation logo featuring a butterfly, hearts and an 'x' for a kiss

Fighting mito,
finding hope.

Making a difference through personal experience

Personal stories

26 September 2023

Last week, BBC Points West ran a story about team member Sarah, who came across The Lily Foundation back in 2018 after losing her two daughters to mitochondrial disease.

Lily founder Liz and fundraiser Sarah wearing Lily hoodies and sitting side-by-side

Sarah immediately began helping families affected by mitochondrial disease, before becoming team Lily’s Corporate Fundraiser.

We were delighted that broadcasters Alex Lovel and Imogen Sellers made time to also mention the fluffy friends involved in our Share a Bear campaign which was aimed at raising awareness of the disease during World Mitochondrial Disease Week – a big thank you to them both!

You can read Sarah’s full story on the BBC News website.

Get involved

If you’d like to volunteer with us but aren’t sure where to start, there are lots of ways you could get involved and help those affected by mitochondrial disease – please get in touch. We look forward to hearing from you!