The Lily story

A search for answers

The Lily Foundation was founded in 2007 by Liz Curtis in memory of her daughter Lily, who died from mitochondrial disease at eight months old.

Finding little in the way of specialist knowledge or support available to help her through her ordeal, Liz set out to provide answers for herself and others in her situation.

What began as an informal network of family and friends quickly grew into a national charity which today supports over 1200 families.

Run by a small team of dedicated staff backed by a medical board drawn from the UK's top centres for mitochondrial research, the Lily Foundation forms a vital link between patients, doctors and medical science bodies. 

Read more about Lily's story