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Stay connected with the mitochondrial disease community

Discover the latest updates from The Lily Foundation and the wider mitochondrial disease community. You’ll find news, personal stories, research updates and insights into the vital support we provide for those affected by mitochondrial disease.

From inspiring stories of families living with mitochondrial disease to breakthroughs in mito research and much more, there’s plenty going on. Sign up to our newsletters and follow us on social media to stay informed and connected – don’t miss a thing!

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Support Research
3 February 2023

"The one place we can be ourselves"

At the recent 49th British Paediatric Neurology Association conference in Edinburgh, we found ourselves one of just eight exhibitors invited to host a stand and display our work. What’s more, we were excited to discover that The Lily Foundation were the only charity selected to deliver an oral presentation at the event.

Support Events
28 July 2022

Lily Family Weekend 2022

Lily Family Weekend made its long-awaited return earlier this month, giving families affected by mitochondrial disease a precious chance to spend quality time together in a safe, supportive environment.

Support
27 January 2022

Lily joins BearHugs scheme to deliver joy to those who need it most

One of the worst aspects of living with a mitochondrial disease, or in fact any serious illness, is the terrible feeling of isolation it can cause. As the Covid pandemic has shown, being stuck indoors day after day, denied physical activities and opportunities to socialise, can quickly become a living hell. A single moment of connection and warmth can make a huge difference.

Support
6 July 2020

Left in lockdown

For parents of children like Coronation Street's Oliver Battersby, the end of lockdown is a long way off, writes the Lily Foundation's Liz Curtis