Fighting mito,
finding hope.

News

Stay connected with the mitochondrial disease community

Discover the latest updates from The Lily Foundation and the wider mitochondrial disease community. You’ll find news, personal stories, research updates and insights into the vital support we provide for those affected by mitochondrial disease.

From inspiring stories of families living with mitochondrial disease to breakthroughs in mito research and much more, there’s plenty going on. Sign up to our newsletters and follow us on social media to stay informed and connected – don’t miss a thing!

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Personal stories
4 December 2017

Brave teen Timothy has the X-Factor

A teenage boy who suffers from mitochondrial disease enjoyed a day to remember after The Lily Foundation arranged for his family to meet stars from X-Factor.

Research
23 November 2017

Lily researchers make their mark

Three young Lily-funded researchers have contributed to an article published in a respected academic journal. Lily research associates Ruth Glasgow, Kyle Thompson and Ines Barbosa were part of an international team whose findings were published in Neurogenetics.

Events Fundraising
3 October 2017

Lily Golf Day raises £12,500

Who needs the British Masters when we have our fabulous Lily Golf Day? This year's event, proved a big hit as usual, helped by blue skies and sunshine at the beautiful Croham Hurst Golf Club in Surrey.

Personal stories
3 October 2017

Racing to beat mito

Congratulations to our daring duo Jon Milne and Sailor Swift, who have made a great start to their circumnavigation of the globe in aid of Lily Foundation. Jon and his teddy bear sidekick, who are sailing in the Clipper Round The World yacht race to raise awareness about mitochondrial disease, have already raised over £1000 on the first leg of their voyage.

Research
3 October 2017

Lily Research News

Supporting medical research into mitochondrial disease is a key part of our work at The Lily Foundation. It's consistent with our long-term goal of finding a cure for mito, and also brings life-changing benefits to people who are living with the disease today. Here we look at a promising study that’s currently underway at University College London.