There’s plenty going on in the mitochondrial disease community, and you can learn all about our work and the support we offer, and read the latest news articles and blogs from across all areas of our charity here.
From personal stories about families affected by a mitochondrial disease diagnosis to the latest mitochondrial research projects and plenty more, why not sign up to our newsletters, and follow us on social media, to ensure you never miss a thing.
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Personal stories
Fundraising
23 March 2018
Gareth Edwards had tackled Mount Kilimanjaro and had his sights set on Everest when a rare form of mitochondrial disease left him struggling to climb the stairs. Here he talks about what it's like to be diagnosed in your 30s, and why he chose to donate a portion of his company's profits to The Lily Foundation.
Events
Fundraising
2 March 2018
Laughter really was the best medicine when the Lily Comedy Night came to London's Comedy Store in February.
Personal stories
23 February 2018
We catch up with Dave Merritt as he prepares to run his 11th London Marathon for The Lily Foundation, the charity set up in his daughter's name.
Personal stories
19 February 2018
When Emily was diagnosed with Leigh Syndrome, a type of mitochondrial disease, at the age of two, doctors told her parents to prepare for the worst. However Emily had other ideas. Now 16 and attending college, she just wants to be treated like any other teenager.
Support
12 February 2018
This Valentine's Day we're telling all our wonderful supporters how much we love them. And that includes you! Read on to find out why you make our heart go pop.
Research
1 February 2018
The patient licence granted to the Wellcome Centre for Mitochondrial Research in Newcastle means the UK is the first country to legally offer this pioneering IVF procedure. This is exciting news for us as we were instrumental in changing the law on mitochondrial donation in the first place.
Fundraising
1 February 2018
Thank you for signing up for a charity challenge and raising funds to help fight mitochondrial disease. To help you get the most out of your fundraising efforts we’ve put together 10 tips to boost your donations and raise awareness about our cause.
Personal stories
19 January 2018
Twins Lauren and Alex Cianfini share a unique bond that allows them to communicate without words. It's a gift that has proved invaluable in helping the family care for Alex, who has mitochondrial disease and is unable to speak.
Fitness
9 January 2018
Just signed up for a charity running challenge and not sure where to start? Perhaps you’ve never run before, or maybe you’re just after a few pointers to get you back on track? Read our top tips and you’ll soon be out on the trail and racking up the miles.
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