News - The Lily Foundation
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Fighting mito,
finding hope.


There’s plenty going on in the world of mitochondrial disease, and you can learn all about our work and read the latest news articles and blogs from across all areas of our charity here.

From personal stories about families affected by the disease to the latest research projects and plenty more, why not sign up to our newsletters, and follow us on social media, to ensure you never miss a thing.

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27 December 2017

The DNA detective

Ines Barbosa is a bioinformatician on the Lily Exome Sequencing Project, a landmark initiative that helps patients with mitochondrial disease discover the exact genetic cause of their illness. Since its launch in 2014 the project has been a huge success, identifying 32 new causative genes and providing 72% of patients tested with a confirmed or highly probable genetic diagnosis. We caught up with Ines at her lab in Guy's and St Thomas' Hospital to find out more about her work.

23 November 2017

Lily researchers make their mark

Three young Lily-funded researchers have contributed to an article published in a respected academic journal. Lily research associates Ruth Glasgow, Kyle Thompson and Ines Barbosa were part of an international team whose findings were published in Neurogenetics.

Personal stories
3 October 2017

Racing to beat mito

Congratulations to our daring duo Jon Milne and Sailor Swift, who have made a great start to their circumnavigation of the globe in aid of Lily Foundation. Jon and his teddy bear sidekick, who are sailing in the Clipper Round The World yacht race to raise awareness about mitochondrial disease, have already raised over £1000 on the first leg of their voyage.

3 October 2017

Lily Research News

Supporting medical research into mitochondrial disease is a key part of our work at The Lily Foundation. It's consistent with our long-term goal of finding a cure for mito, and also brings life-changing benefits to people who are living with the disease today. Here we look at a promising study that’s currently underway at University College London.