There’s plenty going on in the world of mitochondrial disease, and you can learn all about our work and read the latest news articles and blogs from across all areas of our charity here.
From personal stories about families affected by the disease to the latest research projects and plenty more, why not sign up to our newsletters, and follow us on social media, to ensure you never miss a thing.
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Research
20 April 2018
The Lily Foundation are proud to announce a £234,000 funding initiative supporting three new studies into treatments for mitochondrial disease.
Personal stories
Fundraising
13 April 2018
As Team Lily limbers up for the 2018 London Marathon, Kat Kitto recalls how she ran the biggest race of her life for her daughter Poppy, who has mitochondrial disease.
Awareness
Fundraising
10 April 2018
The Lily Foundation is delighted to share news that Peter Kay’s charity screenings of Car Share have raised more than £34,000 to help fight mitochondrial disease. That money will be invaluable in helping us fund research into treatments and support patients and their families affected by the condition.
Events
Fundraising
3 April 2018
Guests at the 2018 Lily Butterfly Ball agreed it was 'the best one yet' when the annual event took place at the Riverbank Park Plaza Hotel, London this month.
Awareness
Fundraising
29 March 2018
The actor and comedian Peter Kay today announced that he will donate all profits from a special screening of Car Share at Blackpool Opera House to The Lily Foundation. We’re delighted to hear this wonderful news and incredibly grateful to Peter for his generosity.
Research
26 March 2018
The Lily Foundation research staff are again part of an international team whose work into improving the diagnosis for mitochondrial disease has been published in a leading science journal.
Research
Awareness
23 March 2018
Did you know there are links between mitochondrial disease and autism spectrum disorder (ASD)? To mark Autism Awareness Week (March 26 - April 2) we've put together 10 facts that highlight those links.
Personal stories
Fundraising
23 March 2018
Gareth Edwards had tackled Mount Kilimanjaro and had his sights set on Everest when a rare form of mitochondrial disease left him struggling to climb the stairs. Here he talks about what it's like to be diagnosed in your 30s, and why he chose to donate a portion of his company's profits to The Lily Foundation.
Events
Fundraising
2 March 2018
Laughter really was the best medicine when the Lily Comedy Night came to London's Comedy Store in February.
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