There’s plenty going on in the mitochondrial disease community, and you can learn all about our work and the support we offer, and read the latest news articles and blogs from across all areas of our charity here.
From personal stories about families affected by a mitochondrial disease diagnosis to the latest mitochondrial research projects and plenty more, why not sign up to our newsletters, and follow us on social media, to ensure you never miss a thing.
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All Articles Support Research Events Personal stories Awareness Fundraising Fitness
Personal stories
Fundraising
24 July 2018
Lily fundraiser Neil Harper has a London Classics medal in his sights as he takes on the RideLondon-Surrey 100 for his friend James, who has mitochondrial disease.
Research
12 July 2018
Armed with Charlie her sub-cellular microscope, Eszter Dombi is part of a new generation of talented scientists leading the way in the field of mitochondrial research. Here she talks about her Lily-funded lab work at John Radcliffe Hospital, Oxford.
Research
6 July 2018
A mitochondrial research nurse based at John Radcliffe Hospital in Oxford and funded by The Lily Foundation, Colwynn Phillips represents the best of our charity's fruitful working relationship with the NHS. Here she talks about her dual role supporting affected families and coordinating a patient cohort.
Support
29 June 2018
This July the National Health Service turns 70. To celebrate we've put together five key ways in which The Lily Foundation works closely with the NHS to support patients and families affected by mitochondrial disease. It's a unique partnership between a small, specialised charity and one of the world’s largest publicly funded health services, and one that we are immensely proud to uphold.
Research
28 June 2018
Leading medical journal The Lancet has published a scientific review written by Professor Shamima Rahman, who is a member of The Lily Foundation Medical Board and has a research project funded by the charity.
Research
24 June 2018
The Lily Foundation has announced funding for important new research into nucleoside therapy as a treatment for mitochondrial depletion syndromes.
Personal stories
30 May 2018
The Lily Foundation, the UK's leading mitochondrial disease charity, has announced that Ben Carter, the top UK marketeer at Just Eat, has been appointed Chair of the charity.
Research
24 May 2018
The Lily Foundation recently attended two conferences to hear about the latest developments in mitochondrial disease research. These were the 11th Annual UK Neuromuscular Translational Research Conference at Fitzwilliam College, Cambridge, and Mitochondrial Medicine 2018 at the Wellcome Genome Campus in Hinxton. Here we share some of the highlights from both events.
Awareness
18 May 2018
The Lily Foundation is set to have its message about mitochondrial disease heard on popular radio stations throughout the UK after being selected as a 2018 Make Some Noise charity.
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