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Fighting mito,
finding hope.


There’s plenty going on in the world of mitochondrial disease, and you can learn all about our work and read the latest news articles and blogs from across all areas of our charity here.

From personal stories about families affected by the disease to the latest research projects and plenty more, why not sign up to our newsletters, and follow us on social media, to ensure you never miss a thing.

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Personal stories 23 February 2018

Marathon man

We catch up with Dave Merritt as he prepares to run his 11th London Marathon for The Lily Foundation, the charity set up in his daughter's name.

Personal stories 19 February 2018

Living with Leigh Syndrome

When Emily was diagnosed with Leigh Syndrome at the age of two, doctors told her parents to prepare for the worst. However Emily had other ideas. Now 16 and attending college, all she wants is to be treated like any other teenager.

Fundraising 1 February 2018

10 ways to boost your fundraising

Thank you for signing up for a charity challenge and raising funds to help fight mitochondrial disease. To help you get the most out of your fundraising efforts we’ve put together 10 tips to boost your donations and raise awareness about our cause.

Personal stories 19 January 2018

A love beyond words

Twins Lauren and Alex Cianfini share a unique bond that allows them to communicate without words. It's a gift that has proved invaluable in helping the family care for Alex, who has mitochondrial disease and is unable to speak.

Fitness 9 January 2018

10 running tips for beginners

Just signed up for a charity running challenge and not sure where to start? Perhaps you’ve never run before, or maybe you’re just after a few pointers to get you back on track? Read our top tips and you’ll soon be out on the trail and racking up the miles.