News - The Lily Foundation
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Fighting mito,
finding hope.

News

There’s plenty going on in the world of mitochondrial disease, and you can learn all about our work and read the latest news articles and blogs from across all areas of our charity here.

From personal stories about families affected by the disease to the latest research projects and plenty more, why not sign up to our newsletters, and follow us on social media, to ensure you never miss a thing.

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Personal stories
25 July 2017

Charlie Gard

Our thoughts and prayers are with Chris Gard, Connie Yates and of course their son Charlie Gard today, as they have been for the last eight months.

Research Awareness
17 July 2017

Highlights of Euromit 2017

We’re excited to share some recent updates on the diagnosis and potential treatments of mitochondrial disease which were discussed at the Patient Meeting of Euromit 2017 in Cologne, Germany, recently.

Research
4 May 2017

Dystonia Awareness Week

A research paper published last year investigated which movement disorders are seen in patients with mitochondrial disease and whether these could be linked to the underlying genetic error. Find out more.