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Fighting mito,
finding hope.


There’s plenty going on in the world of mitochondrial disease, and you can learn all about our work and read the latest news articles and blogs from across all areas of our charity here.

From personal stories about families affected by the disease to the latest research projects and plenty more, why not sign up to our newsletters, and follow us on social media, to ensure you never miss a thing.

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Research 3 October 2017

Lily Research News

Supporting medical research into mitochondrial disease is a key part of our work at The Lily Foundation. It's consistent with our long term goal of finding a cure for mito, and also brings life-changing benefits to people who are living with the disease today. Starting this month, we're going to be bringing you more news about the research studies we fund, and introducing you to some of the doctors and scientists involved. We kick off here with a look at a promising study underway at University College London.

Personal stories 25 July 2017

Charlie Gard

Our thoughts and prayers are with Chris Gard, Connie Yates and of course their son Charlie Gard today, as they have been for the last eight months.

Research 4 May 2017

Dystonia Awareness Week

A research paper published last year investigated which movement disorders are seen in patients with mitochondrial disease and whether these could be linked to the underlying genetic error. Find out more.