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Fighting mito,
finding hope.

News

Stay connected with the mitochondrial disease community

Discover the latest updates from The Lily Foundation and the wider mitochondrial disease community. You’ll find news, personal stories, research updates and insights into the vital support we provide for those affected by mitochondrial disease.

From inspiring stories of families living with mitochondrial disease to breakthroughs in mito research and much more, there’s plenty going on. Sign up to our newsletters and follow us on social media to stay informed and connected – don’t miss a thing!

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Events Fundraising
9 October 2025

Wanted: a prize that money can’t buy

Every bid at a Lily Foundation auction helps change lives. By donating a unique or ‘money can’t buy’ prize, you can help us raise vital funds to support patients and families living with mitochondrial disease and drive forward the research that gives hope for the future. Your generosity could turn one special occasion into a tangible difference.

Personal stories Fundraising
13 May 2025

Why I made the leap into Lily fundraising

“I couldn’t save my two daughters from mitochondrial disease, but their memory drives me to help others and fight for a brighter future,” writes Sarah Moore, our courageous Corporate Fundraising Manager, who turned heartbreak into hope with a skydiving challenge for The Lily Foundation.