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Stay connected with the mitochondrial disease community

Discover the latest updates from The Lily Foundation and the wider mitochondrial disease community. You’ll find news, personal stories, research updates and insights into the vital support we provide for those affected by mitochondrial disease.

From inspiring stories of families living with mitochondrial disease to breakthroughs in mito research and much more, there’s plenty going on. Sign up to our newsletters and follow us on social media to stay informed and connected – don’t miss a thing!

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Personal stories
30 September 2020

Mito stories: Tirion

Read the moving story of Tirion Ray, who died in 2018 after being diagnosed with mitochondrial disease, as told by her mother to The Bristol Post.

Personal stories
4 September 2020

Mito stories: Charlie

Charlie Withers tragically died aged 2, after being diagnosed with mito at 18 months. Read her story as told to The Sun by her mother, Anna.

Awareness
3 September 2020

Mito on Coronation Street

The Coronation Street storyline about Oliver Battersby, a boy with mitochondrial disease, is raising awareness about mito in a big way. We're here to remind people that the heartbreak unfolding on screen is being endured by hundreds of real families in the UK every day.