Fighting mito,
finding hope.

News

Stay connected with the mitochondrial disease community

Discover the latest updates from The Lily Foundation and the wider mitochondrial disease community. You’ll find news, personal stories, research updates and insights into the vital support we provide for those affected by mitochondrial disease.

From inspiring stories of families living with mitochondrial disease to breakthroughs in mito research and much more, there’s plenty going on. Sign up to our newsletters and follow us on social media to stay informed and connected – don’t miss a thing!

Filter by category:

All Articles Support Research Events Personal stories Awareness Fundraising Fitness

A woman with long dark hair looks into the camera

Support
6 July 2020

Left in lockdown

For parents of children like Coronation Street's Oliver Battersby, the end of lockdown is a long way off, writes the Lily Foundation's Liz Curtis

A corner of a building with a sign saying NHS

Support
3 July 2020

Happy birthday NHS!

This month marks 72 years since the NHS was established. To mark the occasion, we're focusing on some of the ways The Lily Foundation works with the NHS to support people with mitochondrial diseases. It's a partnership we're immensely proud of, and one that brings real, lasting benefit to patients and their families.

A small boy on a trike cycling towards the camera

Personal stories Fundraising
24 June 2020

Theo, 3, battles mito with pedal power in Lily fundraising challenge

Theo Amani-Gibbs has mitochondrial disease, but has taken on a 20-mile walking / pedalling challenge for My Mito Miles, the virtual fundraising event organised by The Lily Foundation.

A silhouette of a women running In front of the sun

Fitness
22 June 2020

6 tips for running in hot weather

Whether running is part of your regular fitness routine or you’re training for a one-off charity challenge to help fight mitochondrial disease, here are six tips to help you beat the heat in the summer sun.

The lens of a microscope pointing towards a slide

Research
18 June 2020

Charities put patients first with top 10 priorities for mito research

Charities including The Lily Foundation have worked together with mitochondrial disease patients, their carers and healthcare professionals to determine a 'top 10' list of the most important areas of mitochondrial research.

A man little boy and women smile into the camrea. Each have a lemur sat on them and the little boy is in a wheelchair

Personal stories
1 June 2020

For people with mito, lockdown hasn’t ended

Lockdown restrictions might be easing, but people with mito are more vulnerable than ever in this crisis. Here's how you can help.

Two men and a woman sit beside a hospital bed. In it is a little boy who is asleep with a breathing tube

Awareness
21 May 2020

Mito awareness soars as Coronation Street storyline unfolds

Awareness about mitochondrial disease has soared since Coronation Street began its heartbreaking storyline involving a child who develops the condition.

two little girls holding each other look into the camera

Personal stories Fundraising
18 May 2020

“I win!” 3-year-old Esther defies Leigh Syndrome to take on 2.6 Challenge

A young girl with mitochondrial disease has raised thousands of pounds for The Lily Foundation by taking on the 2.6 Challenge and winning in style.

two men and a woman sit around a hospital bed. In it is a little boy asleep connecting to a breathing tube

Awareness
11 May 2020

Coronation Street's Jane Danson raises awareness about mito on This Morning

Coronation Street star Jane Danson touched the hearts of hundreds of UK families affected by mitochondrial diseases when she highlighted their cause on This Morning.

Previous 1 2 3 … 19 20 21 22 23 24 25 … 32 33 34 Next